Support for Home-based Persons with Motor Neurone Diseases
Ministry of HealthSpeakers
Summary
This question concerns the support available for Motor Neurone Disease (MND) patients with mobility challenges or those requiring home ventilator services, as raised by Dr Tan Wu Meng. Senior Parliamentary Secretary to the Minister for Health Ms Rahayu Mahzam noted that patients receive multi-disciplinary care, with access to private ambulances and specialized transport for bedridden individuals. Financial assistance is provided through medical social workers, while the National Neuroscience Institute offers video consultations and home-based nursing for stable patients. Furthermore, the Ministry of Health-funded Home Ventilator and Respiratory Support Service provides home-based ventilation support, caregiver training, and routine follow-ups to minimize clinic visits. These integrated services ensure care coordination and nursing reviews for pressure sores and feeding tubes are conducted within the patient's home environment.
Transcript
16 Dr Tan Wu Meng asked the Minister for Health what support is available for patients with Motor Neurone Disease including (i) patients with mobility needs who cannot easily go from home to clinic for clinical consultations and (ii) patients who are on the home ventilator respiratory support service.
The Senior Parliamentary Secretary to the Minister for Health (Ms Rahayu Mahzam) (for the Minister for Health): Mr Speaker, patients with Motor Neurone Disease (MND) are cared for by a multi-disciplinary team, which may include neurologists, advanced practice and specialty nurses, physiotherapists, speech therapists, occupational therapists and medical social workers.
Wheelchair-bound MND patients can tap on private ambulances for transportation between their home and the clinic. Special transport arrangements may need to be planned for more severe MND patients who are bedridden, on tube feeding and portable ventilator support. Those facing financial difficulties may be referred to a medical social worker for help with their medical and transport costs.
The National Neuroscience Institute (NNI) also provides follow-up video consultations for some less mobile MND patients to reduce their need to travel to clinic for consultation. Home-based nursing care has also been available for stable MND patients not on ventilation support through the NNI Community Health Programme since November 2020. Under this programme, NNI has provided inter-professional training and advice to community care partners on the management of persons living with neuro-degenerative conditions, including MND. These community nurses are empowered to make home visits to review patients with nursing needs, such as pressure sores and feeding tube issues.
In addition, MND patients needing respiratory support can tap on the the Ministry of Health (MOH)-funded national Home Ventilator and Respiratory Support Service (HVRSS). The HVRSS team from Tan Tock Seng Hospital (TTSH) provides home-based ventilation support, caregiver training and routine follow-up for chronic conditions, including blood tests, care coordination and referrals to other specialists, thus minimising clinic visits for the patient.
1.29 pm
Mr Speaker: Order. End of Question Time. Introduction of Government Bills.
[Pursuant to Standing Order No 22(3), written answers to questions not reached by the end of Question Time are reproduced in the Appendix, unless Members had asked for questions standing in their names to be postponed to a later Sitting day or withdrawn.]